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About
Join a mom and daughter as we share our independent yet concurring journeys of the trials and triumphs of dealing with a rare, incurable, neurological condition Myoclonus Dystonia. This journey includes years of misdiagnoses, harmful medical advice, gaslighting, and isolation but eventually being vindicated after being approved for a life-saving Deep Brain Stimulation surgery. It is a story of being resilient in an unrelenting world.