In 1976, Raymond Williams published Keywords: A Vocabulary of Culture and Society, showing how ordinary words carry buried ideologies that shape what a society can see. This book applies his method to the language that surrounds disabled children.
From Abandonment to Young carer, 177 entries examine the medical, educational, legal, bureaucratic, and everyday vocabulary of child disability. Each traces a word's history, dissects its current usage, and reveals the ideological work it performs - often invisibly, often against the interests of the children it claims to describe.
The word need appears in almost every statute governing disabled children's lives in Britain. It looks like it is about the child. It is about the budget. The word special was introduced to replace categories of deficit. Within a generation it had become a mechanism for segregation. The word care means tenderness, and it means warehousing, and the history of disabled children is the history of that ambiguity being exploited.
Dan McEvoy spent a decade inside the systems that surround disabled children and their families, as the father of a daughter who lived with cerebral palsy, dystonia, and complex medical needs. He is also an autistic person, diagnosed in mid-life, with his own relationship to the vocabularies of deficit and difference. This is not a detached academic exercise. The language of child disability is not an abstraction for the families who live inside it.
Drawing on disability studies, policy analysis, etymology, and lived experience, Keywords builds a cumulative argument: that the language used about disabled children is not a reflection of how we think about them - it is a mechanism by which we avoid thinking about them. Every euphemism, every clinical classification, every sentimental phrase exists in part to manage the discomfort that disability provokes in a society organised around productivity, independence, and normality.
The words are not innocent. They never were.
Approximately 300,000 words. Thematic index grouping entries across medicine, education, law, economics, family, history, and affect.
