I just finished reading your book. I teared up 3 times and laughed twice. You have done an amazing job! I was thinking to myself how you and Karen are handling all of the changes with such grace. The two of you are such an amazing team and have developed such strong communication skills- you two could probably host a course for other married couples.
Another poignant moment for me was on the page where you wrote We also informed our family that we had the disease that did not have a cure... I think the we in that statement is so true.
... your book- have you anticipated how you will share it? You may want to consider both the MDA and ALSA (ALS Association) as outlets to share your story and tips. I also think you should pass this along to some of your neurology providers. I think your Prologue is an exceptional teaching tool for medical professionals.
I still can’t stop thinking about how you continually think about your blessings- I am going to tear up again and I am not a crier! I thank you for allowing yourself to be vulnerable and sharing your experiences. You are lucky to have found Karen, and she is lucky to have found you.
